Palliative Care

Calming Wheelchair

At Portland Providence Cancer Center, a Palliative Care Office is staffed and empowered to provide relief from the pain and stress the goes with being cast in the part of a person with a serious illness.

Palliative Care, unlike Hospice Care, encourages continuing treatment of disease causes and Symptoms, while continuing to offering reduced stress, comfort and relief from pain.

I was referred to Palliative Care by my oncological care team on June 10th, and entered another of period of Change Still_Happening_Too _Fast.

Notes from my Conversation with “Calm,”Wheelchair

Marty:

“Calm, I am liking you too much on first touch! Where Mark would leave a bruise or a dent, you leave a caress…”Perhaps I  am experiencing “a heady romantic attraction– a summer fling”?

Calm:

“Marty, my designers, are Pros.  They obsess over quality of design and production.  The emotional response you experience reveals your need for respectful design not for eros.

If you will, please let yourself accept “Calm”. Remember that excellent design is a “stress-reducing human survival skill” that has served stressed-out humans through the ages.  You are noticing this now because you need it for your healing.  Keep in mind that although your “stressed-out” state makes it hard for you to accept Palliative Care.  The young professionals on your Palliative Care team are here for you.”Try to embrace all of the gifts that they bring — even though some of them will be hard for you to accept, because accepting these gifts will require accepting unwanted changes and side-effects of treatment.

Marty:

“Calm, you dont get it. I have not mentioned the hardest thing yet. TRY ACCOMMODATING TO ALL OF THESE CHANGES WITH  COGNITIVE IMPAIRMENTS GRIP ON REALITY

The most difficult challenges that Eddy and I needed to learn to manage during the first three week of palliative care included

  •  Urinary Incontinence,
  • Constipation,
  • Diarrhea,
  • Motor Nerve impairment at left arm and left leg and corresponding knee and hip joints, which suffer from loss of strength together with surrounding muscles,
  • Mobility impairments caused by home design and exaccerbated by family conflicts,  over what to change in the home and how to effect the changes 
  • Adult tasks of daily living suddenly rendered more difficult and time-consuming.

 

5 thoughts on “Palliative Care”

  1. Greetings Marty and Eddy,
    Both of you remain in my thoughts and prayers. I accompanied my husband (leukemia) and older brother (prostate cancer) on similar journeys. Your wonderful sense of humor will give you strength, and your family and friends will give you bolstering. May the Light surround you in Serenity and Peace, Sue Moroney

  2. Will this wonderful machine be able to take you to Meeting for Worship this Sunday? The room will stay cool – guaranteed!

    If you can’t come to Meeting, when could I drop by for a visit?

    All the best!
    Lew

    1. OH, I just rediscovered our posts (here) about the blessings of having a wheelchair that doesn’t leave a path of destruction to The Homestead or to the ankles of its occupants. I expect that one would have mixed feelings about being pushed around in a fancy wheeled chair…..you can have the option to self-propel in that wheelchair, yes? It sounds like that would be the case.

      The house, I remember, is a one level affair, if you don’t count the basement apartment, which we won’t….

      As you said, typed, things change quickly these days.
      And, you seem to skillfully and gracefully change with the things that are changing, knowing which changes to fight and which to acquiesce to …and, if you think for one minute that I didn’t have to look up the conventional spelling for “acquiesce”, you’re sadly mistaken….

      It does seem that your getting out of the house has been an uplifting experience, and I’m hoping that you can do that today, when the rain stops.

      mr kip, van nuys

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