Palliative Care

Calming Wheelchair

At Portland Providence Cancer Center, The Palliative Care Office is staffed to provide relief from the pain and stress that accompanies being cast in the part of a person with cancer.

Palliative Care, unlike Hospice Care, encourages continuing treatment of causes and symptoms, while attempting to offer reduced stress, comfort and relief from pain.

I was referred to Palliative Care by my oncologist  on June 10th, and encountered more Change Happening Too Fast.

Notes from my Conversation with “Calm” Wheelchair

Marty:

“Calm, I am liking you too much on first touch! Where Mark would leave a bruise or a dent, you leave a caress…”Perhaps I  am experiencing “a heady romantic attraction — a summer fling”?

Calm:

“Marty, my designers, are Pros.  They obsess over quality of design and production.  The emotional response you experience reveals your need for respectful design not for eros.”

If you will, please let yourself accept Calmness. Remember that excellent design is a “stress-reducing human survival skill” that has served stressed-out humans through the ages.  You are noticing this now because you need it for your healing.  Keep in mind that although your “stressed-out” state makes it hard for you to accept Palliative Care, the young professionals on your Home Health team are here for you. “Try to embrace all of the gifts that they bring — even though some of them will be hard for you to accept, because accepting these gifts will require accepting unwanted changes and side-effects of treatment.

Marty:

“Calm, when the body I have identified as “ME” is no longer present without substantial impairment and the mind that I have identified as “MY MIND” invents new stories to explain a new version of reality every night … I fail to see how tips and tricks of physical and occupational therapy are enough.”

Specifically, the most difficult challenges that Eddy and I needed to learn to manage during the first three weeks of home health care included:

  • Motor Nerve impairment of my left arm, leg and corresponding knee and hip joints, which suffer from loss of strength in surrounding muscles,
  •  Urinary frequency and inability to void bladder without help
  • Acute constipation
  • Diarrhea,
  • Mobility impairments in our home, carpets and restricted floor plan
  • Family conflicts,  over when and how to effect changes in home design
  • accepting the change to needing daily inhome care and arranging for employment of that care.

8 thoughts on “Palliative Care”

  1. Greetings Marty and Eddy,
    Both of you remain in my thoughts and prayers. I accompanied my husband (leukemia) and older brother (prostate cancer) on similar journeys. Your wonderful sense of humor will give you strength, and your family and friends will give you bolstering. May the Light surround you in Serenity and Peace, Sue Moroney

  2. Will this wonderful machine be able to take you to Meeting for Worship this Sunday? The room will stay cool – guaranteed!

    If you can’t come to Meeting, when could I drop by for a visit?

    All the best!
    Lew

    1. OH, I just rediscovered our posts (here) about the blessings of having a wheelchair that doesn’t leave a path of destruction to The Homestead or to the ankles of its occupants. I expect that one would have mixed feelings about being pushed around in a fancy wheeled chair…..you can have the option to self-propel in that wheelchair, yes? It sounds like that would be the case.

      The house, I remember, is a one level affair, if you don’t count the basement apartment, which we won’t….

      As you said, typed, things change quickly these days.
      And, you seem to skillfully and gracefully change with the things that are changing, knowing which changes to fight and which to acquiesce to …and, if you think for one minute that I didn’t have to look up the conventional spelling for “acquiesce”, you’re sadly mistaken….

      It does seem that your getting out of the house has been an uplifting experience, and I’m hoping that you can do that today, when the rain stops.

      mr kip, van nuys

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